Research opportunities
Cerebral Palsy – Hōkai Nikurangi is an exciting area of research, science, and clinical practice. Discoveries are being made all the time particularly when it comes to specific areas of living with CP, such as the difference between Level I and V.
The Cerebral Palsy Society regularly gets approached with research opportunities. This page is a place to learn about different studies that are on offer.
By getting involved in research, you’re helping create a more informed and clearer picture for people with CP across Aotearoa New Zealand, guiding advocacy and efforts towards change.
- If you are interested in learning more about the studies listed below, please contact the researcher directly.
- If you would like information about CP research in general, please contact Cerebral Palsy Society Researcher and Writer Amy Hogan amy@cpsociety.org.nz.
- Anyone interested in having their research featured on this page should contact Cerebral Palsy Society Researcher and Writer Amy Hogan amy@cpsociety.org.nz. You will be asked to submit an intro of no more than 200 words, a 2-3 minute video or a written document (maximum of 1 x A4 page) explaining your research, and a head and shoulders photo of yourself.
Help test the KiwiASQ
February 7, 2025
Researchers from Starship Child Health are looking for children and their whānau, living in Auckland, to test the KiwiASQ (Ages and Stages Questionnaire).
The questionnaire, which closes in June, asks about developmental skills that parents in Aotearoa New Zealand value. There is a behaviour and emotions section so that these important skills for young children are identified and understood.
Researchers want to make sure it is easy to use and understand, appropriate and acceptable to all communities, and identifies the children and caregivers who need additional support.
This is your chance to explore your child’s speech, development, and behaviour with a team of child development experts.
The KiwiASQ will be completed online and has colourful examples of activities children do. Participants will then spend a morning at a university or community clinic, watching their child play games-based assessments and giving feedback.
Participants will get a summary of their child’s speech, development, hearing and behaviour, a koha, and a book for their child.
Parking will be available, and transport arranged if needed.
For more information:
Email: kiwiASQ@adhb.govt.nz
Go to: www.kiwiASQ.com
Transition to adulthood
January 24, 2025
Eleni Patsakos is a PhD candidate at the Rehabilitation Sciences Institute at the University of Toronto.
The thesis project is looking at improving the transition to adulthood for youth diagnosed with Cerebral Palsy – Hōkai Nukurangi.
Researchers are looking to get the perspective of youth aged between 12-17 diagnosed with Cerebral Palsy – Hōkai Nukurangi, and their parents, on their experiences and expectations during this transition process.
They also want to know what compassionate care means to you.
This work will inform the development of a compassionate virtual peer navigation program for youth with Cerebral Palsy – Hōkai Nukurangi.
They are currently recruiting youth, their parents and individuals with knowledge of healthcare transitions.
For more information, email: eleni.patsakos@uhn.ca
Join Our Online Community
It’s an important time to be connected. Connecting with your community is an incredibly powerful way to beat isolation at this time.
Join our online community today where you can speak with CPS staff, and other families around New Zealand who either have, or know someone living with Cerebral Palsy.
Visit our FacebookRequest A Call From Our Team
We’re here to help. If you’re feeling isolated or need support, our team is available to talk. Sometimes, having someone to chat with can make a huge difference during this time of isolation.
Why not request a call or email from the team today?
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