The New Zealand Cerebral Palsy Register
Q: What is the New Zealand Cerebral Palsy Register?
A: The New Zealand Cerebral Palsy Register (NZCPR) / Te Rēhita a Hōkai Nukurangi Aotearoa was established in 2015 and aims to be the source of accurate, consistent, relevant, and high-quality health information to support positive health outcomes for all people in Aotearoa NZ with Cerebral Palsy.
The purpose of the NZCPR is to:
- Collect, analyse and report high-quality health data, for all people with Cerebral Palsy
- Describe, monitor and advocate across the life course, for all people with Cerebral Palsy
- Support high quality research that addresses the priorities of people with Cerebral Palsy
- Identify inequities and understand priorities for people with Cerebral Palsy in Aotearoa NZ
- Support Māori health equity for people with Cerebral Palsy and their whanau.
Q: What is involved in being on the New Zealand Cerebral Palsy Register?
A: There are no extra tests or measures required. Once you have read the New Zealand Cerebral Palsy Register Information Sheet and are happy to participate, the Register staff will work either with you and / or your relevant medical records to complete any information on the Register about your Cerebral Palsy.
Q: Do we have to be a part of the New Zealand Cerebral Palsy Register if we are a member of the Cerebral Palsy Society?
A: Being a member of the New Zealand Cerebral Palsy Register is voluntary. You can also opt out at any time. However, the more people with Cerebral Palsy on the Register, the more it can assist with understanding and communicating the needs of people living with Cerebral Palsy in New Zealand.
Q: How do I find out more information about the New Zealand Cerebral Palsy Register?
A: For more information about the New Zealand Cerebral Palsy Register, you can go to the Register’s website, email nzcpregister@adhb.govt.nz or read this information sheet.
