The Early Years (0-5)
Chapter 7 – Whānau resources
Many whānau with lived experience of CP find it helpful to connect with other families with lived experience.
Below is a list of resources that may help or work for your whānau.
|
Organisation |
Information and website |
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Kidshealth |
CP specific advice. |
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Māori and Pacific Disability Support Services
|
A NZ Government site with a list of resources. |
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Vaka Tautua
|
National social services provider by Pacific, for Pacific mental health and disability with a strong presence in the Auckland, Wellington, Canterbury and Otago regions. Disability Services: |
|
Disability Connect |
Disability Information Advisory Service to help people with disabilities and their families lead the life they want. Auckland wide – from Warkworth to Bombay. |
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CCS Disability Action |
Largest disability and support service in NZ. Includes mobility parking. |
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Parent 2 Parent |
National organisation for the parents and whānau of disabled Kiwis. |
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Family Works |
Family Works New Zealand provides seven regional Family Works organisations that respond to local needs. |
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Incredible Years |
Provides a 14-session programme for parents of children aged 3-8 years, providing them with skills to better support their child in a positive home environment. The programme helps promote children’s social and emotional competence and communication skills. |
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Triple P – Stepping Stones |
Stepping Stones is based on Triple P’s positive parenting strategies. It helps whānau manage problem behaviour and developmental issues common in children with disability. |
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Family Success Matters
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Family Start is a free home-visiting programme that focuses on improving children’s growth, health, relationships, family circumstances, environment and safety. |
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Care Matters |
National Carer Learning and Wellbeing Resource Service |
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Complex Care Group
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A support and information network for a special group of carers, run by carers, who look after young people with complex needs. |
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Grandparents Raising Grandchildren
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Services are focused on strengthening and empowering grandparent and whānau care families so that they can raise resilient and healthy tamariki and rangatahi. |
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Complimentary vs Alternative treatments |
Information and advice about complementary and alternative medicine. |
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Hidden Disabilities |
The Hidden Disabilities Sunflower is a lanyard to wear to let people know that you have a disability or condition that means you may need a helping hand, understanding, or more time in shops, at work, on transport, or in public spaces. Available in, and recognised in, New Zealand and internationally. |
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Turnto App |
The Turnto app gathers the latest research, lived experiences, tips, and insights into CP. |
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The Cerebral Palsy Podcast (NZ) |
The Cerebral Palsy Podcast is a voice for the cerebral palsy community. Hear the inspiring stories, challenges and triumphs of NZ’s people living with CP. Hosted by broadcaster Kris Edwards who has CP. |
|
Wilson Home Trust |
Offers a variety of grants dedicated to supporting and enhancing the lives of children and young adults with physical disabilities, as well as their families. |
“Being connected to others with similar experiences was really valuable to us.”
– Family quote
