ABOUT CEREBRAL PALSY
Another 350 million people are closely connected to a child or adult with CP.
It is the most common physical disability in childhood. CP affects movement and its impact can range from a weakness in one hand, to almost a complete lack of voluntary movement.
• 1 in 4 children with CP cannot talk
• 1 in 3 cannot walk
• 1 in 2 have an intellectual disability
• 1 in 4 have epilepsy.
The prevalence of CP has remained relatively at 2.0 to 2.5 per 1000 live births. Approximately 7000 people in New Zealand have some degree of CP (1 in 3 are under 21 years of age).
• NOT progressive – it does not get worse
• NOT infectious
• NOT a disease – it is a disorder
Cerebral Palsy is:
• A one-time event – brain damage
• Does not continue
• Complex, with varying effects
• Difficult to classify
“When I climb, I leave my disability at the bottom step…” -Jordon Milroy
Amy Hogan is currently a researcher and writer for the Cerebral Palsy Society of New Zealand, focusing on living with CP as an adult. She completed her double major in Psychology and History. Amy has been an advocate both inside and outside the disability sector for the past 10 years. She has been active in a variety of areas, both in the community and professionally: conducting seminars for the medical and educational sector, a government policy advisor, volunteer for Mobility Assistance Dogs Trust, public speaking, guest lecturing, Toast Masters, and working in prisons advising on disability. Her professional interests include: scholar activism, health in social media and effective school transitions. In her free time Amy enjoys reading, film, writing, yoga and harvesting her vegetable garden.
Jordon Milroy is not a typical, run-of-the-mill 23 year old. While many of his peers are still very much finding their place in the world, Jordon is busy changing his! He has this energy about him that is infectious and a keen sense of humour that allows him to see the positive in every situation. It’s his attitude to life that he’s desperate to share with other young, and not so young, people living with disabilities. It’s fair to say that Jordon’s Sky Tower climb in 2012 changed his life. Not only was the 1029 step climb a massive achievement, but it also helped to spark a fire that has given Jordon a new direction for his personal development – by climbing some of the world’s largest structures. In early 2013 Jordon had been selected as a Top 10 Semi-Finalist for Young New Zealander of the Year.